Saturday 9 November 2013

Yesterday, I had my check up at the hospital for the first time in just over 3 weeks.
I hadn't been feeling great so I wasn't too sure just how my appointment
would go.. First up, lung function time! Not my favorite thing to do lately.

What?! 35% lung function.
My heart sunk and I could feel myself becoming light headed..

Afterward it was time to see Professor Peter Bye.
My CF specialist, a great doctor at that - he definitely earned his title.
Waiting, waiting, waiting... Finally, my doctor entered the room.
I go on explaining to him all my symptoms -

"I've been experiencing severe chest pain all down my left side, my fractured rib symptoms aren't any better, when I cough I feel like someone is squeezing my lungs from behind, I'm bringing up a lot more mucus then usual, I'm always tired, continuously coughing, I can't sleep at night because I'm so uncomfortable, I'm breathless and can only walk 10 meters on the flat before I get breathless."
Honesty is the best policy but at the same time - I knew only too well where this conversation was headed. Immediately, I was asked to be admitted into hospital, but refusing till next week. He agreed.
Checking my heart and oxygen saturation out of concern, I was told my heart rate was beating way to fast considering I had been sitting for over an hour doing nothing, and perhaps it was because of my severe pain. That's not what I wanted to hear! But neither was being told straight after that we will shortly start to discuss lung transplant.

My world has turned upside down. Where do you go when you can't turn around? 

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